Dad starts chemo next Tuesday...preparing a grocery list.. What can a person on chemo...stomache?.. I was going to get all types of juices...etc... but someone said that makes one sick on chemo... and to buy ensure...or boost... Anyone out there gone throug chemo...and can give me some advice.?
Thanks, Christine
Answer:
I started treatment for lung cancer nine months ago-radiation and chemo together at first- now just chemo. There are so many different chemo drugs and different reactions to them. I have been very lucky so far- no vomiting,very little weight loss. The whole thing has been much better then I expected it to be. I have gotten the best help from the nurses giving the treatments, they deal with side affects every day. I eat almost everything that I ate before most of the time, some days I am just not hungry, on those days I eat soup,crackers, juice or boost. I drink the boost very cold, thru a straw-it helps. I wish I could help you more, this is going to be a day to day thing for your Dad and for you. Fatigue has been my worst problem- there is medication for that and it helps alot. I hope your Dad is also lucky, God Bless.
my mom went through chemo 7 years ago and she just ended up drinking a lot of pedialyte because she couldn't stomach much of anything. they have a new drug now that is supposed to help with appetite and keeping things down during chemo, no idea what it's called, but he should ask his doctor if he should/can take it. i hope everything goes well for him.
There is a newer pill called Ondasatron (No sure spelling is right) but it works really, really, really, well. Everyone is different in how they react to chemo. Puddings are another good option, soups that are not to salty or creamed are good choices. Ice cream, Popsicles, Gatorade type drinks, arrowroot cookies, anything that isn't to greasy, spicy are good choices. Good luck.
After each chemo treatment I am unable to drink/eat anything that is cooler then room temperature for the first 4 - 5 days. My throat constricts and I have trouble breathing. See if you can find out the listed side effects of the drugs your dad will be taking as all of them are different. My appetite is usually pretty non existent for the first couple of days and what I am interested in changes each time. You may want to hold off stocking the fridge/cupboards and see if he craves anything. The anti nausea drugs work wonders.
Smells will make most cancer pts sick to the stomach. I have to eat most of my foods refridgerator cold. Some things I can handle at room temp, but def never hot food right off the stove. Also, check about diets for neutropnia. Some times the chemo will kill the white blood cells making it difficult to fight infection. It is called neutropenia when the white blood cells are below a certain level. During this time you cant eat raw fruits or veggies and extra care needs to be taken when preparing for food. If this is the case the doc should know and will explain this thoroughly, but it never hurts to ask.As far things like boost and the like, I cant stand them. The docs and nurses and nutrional therapists try their hardest to get it down my throat but itsnasty and makes me sick. The closest to that i could handle was gatorade. Juices are good to drink if he can stomach them. And really you could a zillion diff answers on here. It's gonna be a process of trial and error. Some things work for certain ppl and not others. Or some things will work this time but next time won't. I also suggest not serving many favorite foods. Often foods dont have their normal taste because the chemo can effect taste buds. Also, if he gets sick after eating a favorite food it can cause taste aversion. I learned that one the hard way.
Tuesday, May 25, 2010
Anyone Out there with MSUD?
I have 2 children ages 1 and 5, who both have MSUD. I'd like to hear from some folks who have it or whose kids have it. Its so rare, its difficult to share stories and ideas. Thanks.
Answer:
Treatment involves a protein-free diet. During a flare up, fluids, sugars, and fats are given by IV. Peritoneal dialysis or hemodialysis are used to reduce the level of amino acids.
A special diet free of branched-chain amino acids is started immediately.
Long term treatment requires a special diet. The diet includes a synthetic infant formula with low levels of the amino acids leucine, isoleucine, and valine. Persons with this condition must remain on this diet permanently. It is very important to always stick to this diet to prevent neurological damage. This requires frequent blood tests and close supervision by a registered dietitian and a physician, as well as parental cooperation.
Please see the web pages for more details on Maple syrup urine disease (MSUD)
This is a very rare disease and I am sorry that your children have it. I have found web sites that have stories about other children and grown up that have this.
http://www.msudresearchfoundation.org/ms...
http://www.pediatrix.com/body_screening.Chat rooms for MSUD
http://www.angelfire.com/nc2/court1/rule...
Answer:
Treatment involves a protein-free diet. During a flare up, fluids, sugars, and fats are given by IV. Peritoneal dialysis or hemodialysis are used to reduce the level of amino acids.
A special diet free of branched-chain amino acids is started immediately.
Long term treatment requires a special diet. The diet includes a synthetic infant formula with low levels of the amino acids leucine, isoleucine, and valine. Persons with this condition must remain on this diet permanently. It is very important to always stick to this diet to prevent neurological damage. This requires frequent blood tests and close supervision by a registered dietitian and a physician, as well as parental cooperation.
Please see the web pages for more details on Maple syrup urine disease (MSUD)
This is a very rare disease and I am sorry that your children have it. I have found web sites that have stories about other children and grown up that have this.
http://www.msudresearchfoundation.org/ms...
http://www.pediatrix.com/body_screening.Chat rooms for MSUD
http://www.angelfire.com/nc2/court1/rule...
Anyone out there with compassion.?
My brother lives in France and has prostate cancer, he has had it out, but the PSA just keeps rising not much but going up, it is now 3.6. he has been told he will have chemo and the scans are in preparartion for that. How can the PSA levels go up when there is no prostate? Now today they have found it has gone to the liver, the bones are still OK.I am very worried, Daaddy died of leukaemia just three months after we married in 1967, My mother died of pancreatic cancer in Octoebr 2005 and now Chris. he is 63.I do have faith, but very scared.Any compassionate words that would help welcome and prayers.Thank you G
Answer:
Well i certainly feel for you , and will pray for you and yours,your bound ot be scared as you already knw its life changing for all involved faith is all well and good , and you always need something at times like this ,but often i wanted my faith to provide major miracles, when in actual fact ihave come to the conclusion its just to get you through , they will manage fine in the end as the strength in people like this astonishes me in fact encourages me i hope you get to spend some time around your brother ..its fine and normal to be scared the whole roller coaster of emotions you might be feeling now and in the future.
Im not sure what else to say as nothing can make you fell better but i will pray that you get peace that surpasses all understanding ...and im sure you know , but in case you have forgotten where faith in concerned feelings dont count , well what im trying to say is that dont think that cos your feelings are tearin you apart that thats a reflection on your faith as its not you rfaith will walk you through the pain though it wont eliminate it...i dont think i can tellyou anything you dont already know but having walked through this with my best friend though i dont know exactly how your feeling i know it hurts like hell.if you want to email me just to use me as an annoymous sounding board feel free ..mean while i will pray for your family...take care
i will say a prayer for you and your family this evening i send u my love and best wishes!!
xxxxxxx
gareth
It is never easy to lose a loved one. My parents died over five years ago, and a day doesn't pass that I don't think of them and miss them. But life and death are what they are, we none of us escape. Enjoy your brother while you can, be sure to tell him you love him and settle any disagreements between you. Who knows, the chemo may work, it has been known to ya know. Keep a positive mind set, don't let the fear in. There is no good reason to fear, it just makes you miserable and doesn't change a thing.
i really feel for you, my mother had cancer in her liver but they cut most of it out and it regrew, dont lose hope!!
I'm sorry to hear about your brother.I lost my dad to cancer a few years ago, and my mum just got over it.Unfortunately it is so common. They say 1 in 3 people will get it at some point in their life. However, treatments are getting better as more research is being done into this awful disease, and a lot of people do get better.Be positive for your brother. At the same time, make some time for yourself - counselling would be good for you i think - i went myself and found it very helpful.One thing i do to make myself feel better is to raise money for the cancer research charity sometimes - it makes me feel like i am at least doing something to remember my dad by and help others and their families.Thinking of you. xx
nobody knows for certain how long we are all here. we are here only temperarily really- enjoy your time you may have left with your brother. i send you the strength to continue xxxx
don't loose hope, and we all, well most of us know god works in strange ways, there has to be a reason to all of your brothers and previous family suffering. keep your head up. that doen't mean it won't hurt, but you have to stay strong for yourself and your family. i'll say a prayer for you all. (huggs)
I'm sorry for your brother. I know what you are feeling since I lost my grandmother today due cancer.
I will answer the easiest part of your question. The PSA level is increasing because the metastasis of prostate cancer are also secreting PSA.
My husband is going through chemo for liver and lung cancer, he refuses to be beaten. *HUGS* for you hunni, I know how you feel. xxxx
I won't beat around the bush. I am truly sorry to hear about your brother, however I might be able to help. I have no idea what PSA is but I know chemo is used on cancer. Garlic has extremely good anti-cancer qualities; something about killing the 'free-radicals' Eat one piece a day for the best results. People don't know about this because business cannot patent a natural plant, so they can't make profit from it. They'd rather sell us fantastically expensive ineffectual medicines that cripple the health service and probably only extend life for a short period. Garlic is cheap, you really have nothing to lose. If he doesn't like garlic, then blend it into a drink.
Of course I will pray for you, it'll go something like this:Dear GOD,
Please help this person's brother recover from prostate cancer, and please help this person from grieving from his/her loss of his/her parents. Please help this person to understand that it's alright to be upset, but to always have faith,
AMENWhatever you do, please always have hope, and if you and other friends pray hard enough, then hopefully your brother can live, I'll help spread the word. You are special, and your brother."Don't give up, don't ever give up." Jimmy V.
i know what its like to lose the ones you love to cancer,it is the most heart breaking thing in the world to watch helplessly,you can only take one day at a time,
be strong when you can,
be weak when you need to be,
take care my thoughts are with you.
I Will Say A Prayer For You %26 Your Family Tonight!
I Hope Everything Goes Well For You!
Take Care %26 Best Wishes
Jen xxx
I am so sorry to hear about your brothers illness. My partner died of lung cancer 14 months ago, I cared for him at home and he died in his bed with us around him. I found strength from somewhere, I prayed a lot and we cried a lot. Its an awful experience but I still feel stronger even now, and learnt so much about dignity and love. I do not want to upset you, but please be strong and go be with him if you can. I will say a little prayer for you. C.
My wife was diagnose with pancreatic neuro-endocrine cancer 2 yrs ago and now has breast cancer and has underwent her first chemo. She will receive a removal and then re-construction surgery after chemo. My wife is 32.
I have nothing but faith in my wife.. I have been scared... all i can offer is my best wishes to you and use the phrase "keep your chin up".Don't waste your days feeling down. Stay positive and look to the future. P.s. any chance of an invite to his 70th??
I have had Cancer for 11 years, it spread from my Kidney to my bones 6 years ago and I am still here...be positive..that is one of the key things...yes he may well die, we all do, but how life is lived until then is the most important thing...so do things..don't spend all your time in Hospitals..he will feel bad during Chemo, but there will be good days, so enjoy them...he lives in a beautiful country with good food and wine so try sampling them...Try not to be full of the compassionate words, there will be time for that...see him, arrange nights out, trips out, holidays away, anything at all, but take the opportunity to do some things he has always wanted to do...I have and now if I am taken I can go happy.so don't despair, that is the worst thing...stand tall and take it on..
Answer:
Well i certainly feel for you , and will pray for you and yours,your bound ot be scared as you already knw its life changing for all involved faith is all well and good , and you always need something at times like this ,but often i wanted my faith to provide major miracles, when in actual fact ihave come to the conclusion its just to get you through , they will manage fine in the end as the strength in people like this astonishes me in fact encourages me i hope you get to spend some time around your brother ..its fine and normal to be scared the whole roller coaster of emotions you might be feeling now and in the future.
Im not sure what else to say as nothing can make you fell better but i will pray that you get peace that surpasses all understanding ...and im sure you know , but in case you have forgotten where faith in concerned feelings dont count , well what im trying to say is that dont think that cos your feelings are tearin you apart that thats a reflection on your faith as its not you rfaith will walk you through the pain though it wont eliminate it...i dont think i can tellyou anything you dont already know but having walked through this with my best friend though i dont know exactly how your feeling i know it hurts like hell.if you want to email me just to use me as an annoymous sounding board feel free ..mean while i will pray for your family...take care
i will say a prayer for you and your family this evening i send u my love and best wishes!!
xxxxxxx
gareth
It is never easy to lose a loved one. My parents died over five years ago, and a day doesn't pass that I don't think of them and miss them. But life and death are what they are, we none of us escape. Enjoy your brother while you can, be sure to tell him you love him and settle any disagreements between you. Who knows, the chemo may work, it has been known to ya know. Keep a positive mind set, don't let the fear in. There is no good reason to fear, it just makes you miserable and doesn't change a thing.
i really feel for you, my mother had cancer in her liver but they cut most of it out and it regrew, dont lose hope!!
I'm sorry to hear about your brother.I lost my dad to cancer a few years ago, and my mum just got over it.Unfortunately it is so common. They say 1 in 3 people will get it at some point in their life. However, treatments are getting better as more research is being done into this awful disease, and a lot of people do get better.Be positive for your brother. At the same time, make some time for yourself - counselling would be good for you i think - i went myself and found it very helpful.One thing i do to make myself feel better is to raise money for the cancer research charity sometimes - it makes me feel like i am at least doing something to remember my dad by and help others and their families.Thinking of you. xx
nobody knows for certain how long we are all here. we are here only temperarily really- enjoy your time you may have left with your brother. i send you the strength to continue xxxx
don't loose hope, and we all, well most of us know god works in strange ways, there has to be a reason to all of your brothers and previous family suffering. keep your head up. that doen't mean it won't hurt, but you have to stay strong for yourself and your family. i'll say a prayer for you all. (huggs)
I'm sorry for your brother. I know what you are feeling since I lost my grandmother today due cancer.
I will answer the easiest part of your question. The PSA level is increasing because the metastasis of prostate cancer are also secreting PSA.
My husband is going through chemo for liver and lung cancer, he refuses to be beaten. *HUGS* for you hunni, I know how you feel. xxxx
I won't beat around the bush. I am truly sorry to hear about your brother, however I might be able to help. I have no idea what PSA is but I know chemo is used on cancer. Garlic has extremely good anti-cancer qualities; something about killing the 'free-radicals' Eat one piece a day for the best results. People don't know about this because business cannot patent a natural plant, so they can't make profit from it. They'd rather sell us fantastically expensive ineffectual medicines that cripple the health service and probably only extend life for a short period. Garlic is cheap, you really have nothing to lose. If he doesn't like garlic, then blend it into a drink.
Of course I will pray for you, it'll go something like this:Dear GOD,
Please help this person's brother recover from prostate cancer, and please help this person from grieving from his/her loss of his/her parents. Please help this person to understand that it's alright to be upset, but to always have faith,
AMENWhatever you do, please always have hope, and if you and other friends pray hard enough, then hopefully your brother can live, I'll help spread the word. You are special, and your brother."Don't give up, don't ever give up." Jimmy V.
i know what its like to lose the ones you love to cancer,it is the most heart breaking thing in the world to watch helplessly,you can only take one day at a time,
be strong when you can,
be weak when you need to be,
take care my thoughts are with you.
I Will Say A Prayer For You %26 Your Family Tonight!
I Hope Everything Goes Well For You!
Take Care %26 Best Wishes
Jen xxx
I am so sorry to hear about your brothers illness. My partner died of lung cancer 14 months ago, I cared for him at home and he died in his bed with us around him. I found strength from somewhere, I prayed a lot and we cried a lot. Its an awful experience but I still feel stronger even now, and learnt so much about dignity and love. I do not want to upset you, but please be strong and go be with him if you can. I will say a little prayer for you. C.
My wife was diagnose with pancreatic neuro-endocrine cancer 2 yrs ago and now has breast cancer and has underwent her first chemo. She will receive a removal and then re-construction surgery after chemo. My wife is 32.
I have nothing but faith in my wife.. I have been scared... all i can offer is my best wishes to you and use the phrase "keep your chin up".Don't waste your days feeling down. Stay positive and look to the future. P.s. any chance of an invite to his 70th??
I have had Cancer for 11 years, it spread from my Kidney to my bones 6 years ago and I am still here...be positive..that is one of the key things...yes he may well die, we all do, but how life is lived until then is the most important thing...so do things..don't spend all your time in Hospitals..he will feel bad during Chemo, but there will be good days, so enjoy them...he lives in a beautiful country with good food and wine so try sampling them...Try not to be full of the compassionate words, there will be time for that...see him, arrange nights out, trips out, holidays away, anything at all, but take the opportunity to do some things he has always wanted to do...I have and now if I am taken I can go happy.so don't despair, that is the worst thing...stand tall and take it on..
Anyone out there know any good websites about Fibromaygia?
I am newly diagnoised?
Answer:
http://www.butyoudontlooksick.com... - is a great support network for those suffering with chronic invisible illnesses such as Fibromyalgia. Sorry to hear about your diagnosis, and hope you're coping ok.
Answer:
http://www.butyoudontlooksick.com... - is a great support network for those suffering with chronic invisible illnesses such as Fibromyalgia. Sorry to hear about your diagnosis, and hope you're coping ok.
Anyone out there experience weight gain from taking Actos for Diabetes?
Hubby has been taking this medication for the past better part of a year and he keeps gaining weight, expecially in midsection..more like a bloating..not like him at all. Will also ask family physician but appointment is a month off yet. A friend had same probem and was treated at John Hopkins and taken off Actos.
Answer:
I gained about 10 pounds over a 4 month period on Actos. My docter switched me to Januvia and now Im losing weight. Actos made me feel bloated and sluggish, I couldnt take it and made my doctor switch me off it.
most antidiabetic agents cause weight gain, usually 5-10 pounds
Yes, I, too, gained weight. I was on metformin but it caused diarrhea so I was changed to actos. I had lost 10 lbs with the metformin, but as soon as I started taking actos, I regained the 10 lbs plus another 10 lbs. I have a new dr. so I am going to ask about changing meds again. Maybe I should go back to metformin, it was better than dieting, LOL.
Everyone on Actos gains weight.
unfortunately weight gain is one of the side effects of actos.
i took actos and i took advandia both caused weight gain it due to water retention i do believe although i had an endocronologist (asshole) tell me the only way to gain weight was to eat more food than your body needs. he wouldn't even listen to me that i didn't eat all that much compared to what i used to eat i'm practically starving myself. any way when i left i felt like an inch tall.
Answer:
I gained about 10 pounds over a 4 month period on Actos. My docter switched me to Januvia and now Im losing weight. Actos made me feel bloated and sluggish, I couldnt take it and made my doctor switch me off it.
most antidiabetic agents cause weight gain, usually 5-10 pounds
Yes, I, too, gained weight. I was on metformin but it caused diarrhea so I was changed to actos. I had lost 10 lbs with the metformin, but as soon as I started taking actos, I regained the 10 lbs plus another 10 lbs. I have a new dr. so I am going to ask about changing meds again. Maybe I should go back to metformin, it was better than dieting, LOL.
Everyone on Actos gains weight.
unfortunately weight gain is one of the side effects of actos.
i took actos and i took advandia both caused weight gain it due to water retention i do believe although i had an endocronologist (asshole) tell me the only way to gain weight was to eat more food than your body needs. he wouldn't even listen to me that i didn't eat all that much compared to what i used to eat i'm practically starving myself. any way when i left i felt like an inch tall.
Anyone out there ever diagnosed with IgA Deficiency?
The last year I've been getting quite a few upper respiratory infections like bronchitis, strep pneumonia, sinus infections. Otherwise, I am always healthy. After another bought with a sinus infection my doc ran an immunoglobulin panel and found my IgA level to be 30. Normal is like 81-463. Apparently, IgA is found in the mucuos membranes and protects us from all these upper respiratory infections. All of my other immunoglobulin numbers were normal but the IgA. He said don't lose sleep over it. It's a mild condition...I may get sick more often and be on antibiotics more often but nothing life threatening. He's sending me to an immunologist to confirm this and discuss how I can boost my IgA. I'm 31 with a toddler and really scared. Does anyone have this or know anyone else that does? I feel very nervous but at the same time grateful it's not something worse.
Answer:
The best way to treat IGA Deficiency these days is Xolair. One a month injection that will get your levels back to normal. It is expensive thought. Otherwise allergists will give you shots for many years with little results. Xolair is a godsend for many people. Some insurance will cover it these days.
Answer:
The best way to treat IGA Deficiency these days is Xolair. One a month injection that will get your levels back to normal. It is expensive thought. Otherwise allergists will give you shots for many years with little results. Xolair is a godsend for many people. Some insurance will cover it these days.
Anyone on prescribed acne medicine?
I just started minocycline,loma lux acne pill,epionce face wash and sodium sulfacetamide and sulfur lotion...has anyone ever used any of these medicines?
if so... what do you think of them?
Answer:
I used monotrycycline in oral form, and since you had to drink a gallon of water with it , I came up short on the water and passed out after urinating. All the topical medication I used only made my face unnaturally oily and shiny, and had warnings to stay out of the sun
I do,they work great.
if so... what do you think of them?
Answer:
I used monotrycycline in oral form, and since you had to drink a gallon of water with it , I came up short on the water and passed out after urinating. All the topical medication I used only made my face unnaturally oily and shiny, and had warnings to stay out of the sun
I do,they work great.
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